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Welcome to Living Donor 101!

Because LD101 strives to be the most comprehensive place on the web for all things living donation related, this site is very text heavy and reference saturated.

Our goal is not to promote living organ donatinon, but to provide the information and support necessary for an individual to make an educated decision about living donation (whether as a potential donor, or as a would-be recipient, or living donor loved one).

Of equal importance is our dedication to the support and care of current living donors, especially those who have been harmed as a result donating. We offer explanations as well as suggestions for accessing treatment or redress for inadquate care.


Below is what we like to call the Living Donation 101: Cliff Notes version.


  • According to OPTN, 4.4 living kidney donors die every year in the US within 12 months of donating.

  • 20% of living kidney donors experience complications. Some require surgical internvention and/or lifelong maintainence.

  • 40% of living liver donors experience complications. A number that is not expected to decrease any time in the foreseeable future.
  • Living kidney donors also experience 37 cardiovascular changes within one-year of donating, which are associated with heart disease. In fact, a 10% reduction in kidney function significantly increases one's risk of CV disease and death. LKDs lose 20-45% of theirs (some more, if the remaining kidney doesn't apart).

  • The US had no national standards of living donor care until 2013. Even now, the policy is so vague that if a potential kidney donor is rejected during evaluation, the transplant center *must* tell the individual that s/he can be evaluated at another hospital with "different selection criteria".

  • We have NO comprehensive data on living donor health and well-being. The Secretary of health mandated one year of follow-up on all living donors in 2000, but the centers have been so noncompliant that a 2009 report said the database was "woefully incomplete" and "useless" for research or analysis. In 2013, OPTN admitted that 35% of LKDs were reported "lost" to follow-up with indication contact was attempted.



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We're accepting donations to help us become a nonprofit organization. Contact us if you'd like to serve on the Board. Click here to learn more about how this will help us provide services to more living donors.




This website is certified by Health On the Net Foundation. Click to verify. This site has always complied with HON. Due to a changing financial landscape, HON began charging for their services in 2015. Since LD101 has no steady revenue stream, we could not continue to participate.


*New pages and material are added on a regular basis. If there is something you would like to see on LD101, please contact us.


Last Updated: August 31, 2015