Advocacy Potpourri

2012 Wrap-Up: Statistics and Favorite Posts

In case you missed it, I did one of these last year too, which can be found by clicking HERE.


Unique visitors to Living Donor 101 increased 82% over 2011.

Number of visits grew 75%.

Page views were up 70%.

And finally, LD101 experienced a 145% gain in hits over the prior year.


The following are my favorite posts from 2012, in no particular order:

Public Kidney Donor Solicitation Redux: My criticism of a full-page advertisement in an alternative newspaper sparks a response from the would-be recipient’s sister – two years later.

Living Kidney Donors Health & Well-Being Ten Years Later: Data from Switzerland’s living donor registry. Not only is it not encouraging, it made a whole bunch of people very angry.

The Latest on Living Kidney Donor Follow-up (Hint: it’s still really, really bad): The most recent and still damning charts  detailing how U.S. transplant centers aren’t taking care of their living donors post-discharge.

Why Iran’s Kidney Market Should Not be Emulated: Because this idea of paying folks for kidneys keeps coming up.

Hate Mail is not HEROic; from a doctor and lawyer, no less: It’s pretty obvious why I chose this one.

And finally, Some Living Donor Love From a Doctor With Kidney Disease. Because it’s good reminder of exactly what I’m trying to do here.


I’m grateful and proud that so many people find Living Donor 101 and this blog a source of information, guidance and comfort. Contrary to what my plagiarist’s spokesperson* thinks, much of LD101/LDPT’s content isn’t found anywhere else, and certainly not in a form comprehensible by the average person.

That being said, I am only one woman, and the growth of the site and the blog have also meant a bigger investment of my time and energy. This time last year I was optimistic I could make that happen, but if I use donations as a measure, LD101 and LDPT have absolutely no value at all, despite their growing visibility.

Don’t misunderstand me: I’m not begging for money** (Anything that would’ve come in was to be spent on the IRS nonprofit registration fee). But the lack thereof sends a certain message and also makes continued operation difficult. My intention to form a nonprofit was to have the ability to apply for grant money so LD101/LDPT could reach more people in more ways. Unfortunately that hasn’t happened.

In short, I need your help. If you’d like to contribute guest blog posts, or have ideas you’d like to discuss with me, I want to hear from you. Addressing these issues is going to take a lot more than just me.


*Yep, my work was used in a professional symposium sponsored by a major transplant center and not credited. After my first communication was ignored, I escalated my complaints, which finally produced a response. Unfortunately, while it included a “fine, we’ll give you credit” (without acknowledgement of the plagiarism), it also contained three insults and demeaning comments. Very professional.

**But a job, that’s another story. I applied for a plethora of jobs (part-time, full-time, contract, etc) in 2012 and got nowhere, so yeah, a job would be nice.




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