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Living Donor 101!
Because LD101 strives to be the most comprehensive place
on the web for all things living donation related, this site is
very text heavy and reference
Our goal is not to promote living organ donatinon, but to
provide the information and support necessary for an individual
to make an educated decision about living donation -
whether as a potential donor, would-be recipient, or living
donor loved one.
We are dedicated to the support and care of
current living donors
, especially those who have been harmed as
a result of donating. In addition to information about symptoms
and complications, LD101 offers suggestions
for obtaining needed treatment and/or redress for inadquate care.
Below is what we like to call the Living Donation 101: Cliff Notes
- 20% of living kidney donors experience
Some require surgical internvention and/or lifelong
- 40% of living liver donors experience
complications. This number
that is not expected to
decrease any time in the foreseeable future.
- Living kidney donors also experience
37 cardiovascular changes within one-year of
donating, which are associated with heart disease. In fact, a
10% reduction in kidney function significantly increases one's
risk of CV disease and death. LKDs lose 20-45% of theirs (some
more, if the remaining kidney doesn't adapt).
US had no national standards of living donor care until 2013.
Even now, the policy is so vague that if a potential kidney
donor is rejected during evaluation, the transplant center
*must* tell the individual that s/he can be evaluated at another
hospital with "different selection criteria".
- We have
NO comprehensive data on living donor health and
well-being. The Secretary of health mandated one year of
follow-up on all living donors in 2000, but the centers have
been so noncompliant that a 2009 report said the database was
"woefully incomplete" and "useless" for research or analysis. In
2013, OPTN admitted that 35% of LKDs were reported "lost" to
follow-up with no indication contact was attempted.
Note: the numbers in parentheses
that you'll see throughout this site are references to source
material. They can be found on the far right of the menu under
'Misc' and References.
Want to help?
We're accepting donations to help us become a nonprofit organization.
Contact us if you'd like to serve on the Board.
Click here to learn more about how this will help us provide services to more living donors.
This site has always complied with HON. Due to a changing financial
landscape, HON began charging for their services in 2015. Since
LD101 has no steady revenue stream, we could not continue to
Last Updated: October 28, 2015