Back in July, I talked about OPTN’s data on living donors from January 2008 – March 2009. Specifically, I outlined the reported* complication and re-hospitalization rates. Buried in the midst of all that info, I also reported:
However, not all living donors were reported to UNOS at the six-week, six-month and 12-month mark. 134 were lost by the six-week mark, another 884 by six-months, and an additional 3060 by one-year.
7481 people became living donors in those 15 months.
1.8% were lost by six-weeks.
11.9% disappeared by six months.
And by one-year, 41% were ‘unknown/unreported’.
I’ll let Mandelbrot (2009) take it from here:
In general, U.S. transplant programs are not responding to [the] call for widespread and prolonged follow-up of living kidney donors, nor are they satisfying [OPTN] goals for specific information postdonation…Arguments that donor follow-up would benefit donors themselves, as well as contribute to the knowledge base of the field, do not seem to be commonly accepted.