Take Action

Below are a list of public policy officials and organizations who have influence over living donation related policies and laws.

Remember: always be polite, professional, and use facts and references to back up your message. See the page on the need for a Living Donor Registry for a sample letter.


HIPAA Violations

To report privacy violations: http://www.hhs.gov/ocr/privacy/hipaa/complaints/index.html


State Lawmakers.

Many organ transplant related issues, such as ratification of the latest version of UAGA, are dealt with on the state level. Many insurance issues can be resolved via state laws as well.

Find state officials


Federal Lawmakers:

Find Your State Representative

House Leaders, including Speaker of the House, Office of the Majority Leader, Office of the Republican Leader, and House Majority Whip.

House Committee on Science and Technology, specifically the Subcommittee on Research and Science Education, responsible for “research and development relating to health, biomedical, and nutritional programs” (e.g. stem cell research which could be used to grow donor organs)

Senate –

Find your Senator (search in upper right corner of page)

Committee on Commerce, Science and Transportation, whose jurisdiction includes “Science, engineering, and technology research and development and policy.” Includes stem cell research and the health insurance industry.

Committee on Health, Education, Labor and Pensions, specifically Health Policy, which oversees the Department of Health and Human Services (DHHS), and public health and health insurance statutes.


Public Policy Departments and Organizations.

(see Public Policy Organization page for detailed descriptions of each institution)

Secretary of Health (Whoever that may be at the time).

Office of the Secretary number -202-690-7000

Department of Health and Human Services (DHHS), parent department of HRSA, OPTN, etc.

The U.S. Department of Health and Human Services
200 Independence Avenue, S.W.
Washington, D.C. 20201
Telephone: 202-619-0257
Toll Free: 1-877-696-6775

Health Resources and Services Administration (HRSA):

HRSA, Health Care Systems Bureau, Dept of Transplantation:

Division of TransplantationRobert Walsh

Advisory Committee on Organ Transplantation (ACOT), established by DHHS as an neutral voice for issues and policies of organ transplantation. Attend and testify at twice a year meetings, or Contact specific members.

Organ Procurement and Transplantation Network (OPTN). Provide feedback regarding proposed policy changes, or sign-up to receive public comment notices.

Also, join a committee, attend committee event, or contact a committee member.

Minority Affairs: http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=19

Living Donor: http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=59

Ethics: http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=3

Board: http://optn.transplant.hrsa.gov/members/boardOfDirectors.asp

Find your OPTN regionand contact the Councillor and Administrator (found on Board or Directors page)

United Network for Organ Sharing (UNOS). OPTN’s private contractor to administer the national organ transplant waiting list. Contact Key Staff.

And – join our newsletter.

Last updated: August 7, 2013