Below are a list of public policy officials and organizations who have influence over living donation related policies and laws.
Remember: always be polite, professional, and use facts and references to back up your message. See the page on the need for a Living Donor Registry for a sample letter.
To report privacy violations: http://www.hhs.gov/ocr/privacy/hipaa/complaints/index.html
Many organ transplant related issues, such as ratification of the latest version of UAGA, are dealt with on the state level. Many insurance issues can be resolved via state laws as well.
House Leaders, including Speaker of the House, Office of the Majority Leader, Office of the Republican Leader, and House Majority Whip.
House Committee on Science and Technology, specifically the Subcommittee on Research and Science Education, responsible for “research and development relating to health, biomedical, and nutritional programs” (e.g. stem cell research which could be used to grow donor organs)
Find your Senator (search in upper right corner of page)
Committee on Commerce, Science and Transportation, whose jurisdiction includes “Science, engineering, and technology research and development and policy.” Includes stem cell research and the health insurance industry.
Committee on Health, Education, Labor and Pensions, specifically Health Policy, which oversees the Department of Health and Human Services (DHHS), and public health and health insurance statutes.
Public Policy Departments and Organizations.
(see Public Policy Organization page for detailed descriptions of each institution)
Secretary of Health (Whoever that may be at the time).
Office of the Secretary number -202-690-7000
The U.S. Department of Health and Human Services
200 Independence Avenue, S.W.
Washington, D.C. 20201
Toll Free: 1-877-696-6775
Advisory Committee on Organ Transplantation (ACOT), established by DHHS as an neutral voice for issues and policies of organ transplantation. Attend and testify at twice a year meetings, or Contact specific members.
Minority Affairs: http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=19
Living Donor: http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=59
And – join our newsletter.
Last updated: August 7, 2013